Reprinted
below is the Congressional testimony of Rebecca Cole, a mother whose
son died of complications from varicella infection. She presented
this testimony before the U.S. House of Representatives, Committee
on Government Reform, at the August 3, 1999, Congressional hearing
on vaccine safety.
My name is Rebecca Cole, and I am the mother of five children.
I am not a doctor and cannot give medical advice, but I can share
my personal experience with you.
I have faced the worst nightmare any parent can possibly face.
There is no experience on earth that compares to the horror and
devastation of losing a child. It is shattered dreams, crushed wishes,
and a future that suddenly vanishes before our eyes. It cannot be
wished away, slept away, prayed away, or screamed away.
It is darkness, agony, and shock. It leaves our hearts broken,
bleeding, and bursting with pain, and it changes us forever.
My life changed forever on June 30, 1988, when I had to stand by
helplessly as an infectious disease claimed the life of my oldest
child, Christopher Aaron Chinnes, at the age of 12.
Christopher was a beautiful little boy who had light blonde hair
and deep, brown eyes. He was full of compassion, joy, and energy.
He loved baseball, and every living creature on the earth. He wanted
to be a scientist or doctor. I can honestly say that my son was
one of the most beautiful human beings I have ever known, and I
am proud to have been his mother.
Christopher was born a very healthy child, but at the age of eight
he developed asthma. It was never a problem for him, and it never
kept him from doing the things he loved. But on June 16, 1988, four
years after he was diagnosed, he suffered his first and only severe
asthma attack. He had to be hospitalized and was treated with all
of the normally prescribed drugs, including corticosteroids (anti-inflammatory
drugs used in asthma, arthritis, allergies, etc.).
He was released four days later with several medications to finish
at home, and he was well on his way to recovery. On June 23, exactly
one week after the asthma attack, he broke out with the chickenpox.
"Don't worry, you'll get over it," I told him.
What I didn't know was that the corticosteroid had lowered his
body's immune response and he could not fight the disease. The chickenpox
began to rampage wildly through his young body. As I drove him to
the emergency room on June 27, my four younger children watched
silently in shock and horror as their brother went into seizures,
went blind, turned gray, and collapsed due to hemorrhaging in his
brain.
That afternoon Christopher was flown from Camp Lejuene's Naval
Hospital to East Carolina University's Medical Center, but the chickenpox
was uncontrollably sweeping through him like a wildfire, and there
was nothing anyone could do.
The next day Christopher suffered a cardiac arrest and slipped
into a coma. As my beautiful little boy lay swollen beyond recognition
and hemorrhaging from every area imaginable, including out into
the blisters on his skin, I learned that a vaccine existed, but
was not yet licensed by the FDA. A vaccine that could have prevented
the unimaginable suffering of my child, and all who knew him.
On June 30, 1988, exactly one week after breaking out with chickenpox,
Christopher passed away. He died. He wasn't injured. He wasn't left
acting differently. He wasn't crippled. He died. My priceless little
boy lay on a cold steel table, swollen beyond recognition, cold,
and dead. Gone from me. Gone from life itself. I cannot hold him,
kiss him, see his smile, or listen to his laughter as he chases
a ball or bullfrog.
Instead, I visit a grave. The chickenpox virus destroyed every
organ in his body, and it cut pieces from the hearts of everyone
who witnessed its devastation.
No one is sure just what dose of corticosteroid it takes to lower
an individual's resistance, and most people on these valuable drugs
do well when they get the chickenpox. Without knowing for sure though,
who would want to take a chance. Do not take anyone off of corticosteroids
suddenly! The drug has to be withdrawn slowly. Consult your doctor
for more information, and don't get scared, be informed.
Please don't get the impression that only those who are immunosuppressed
can have problems with chickenpox. Anyone can. In fact about half
of those who suffer complications or die each year are normal healthy
people.
Vaccines prevent countless deaths each year. Without them the number
of valuable human beings we'd lose would be staggering. Yes, sadly,
some injuries and deaths occur as a result of vaccines, but unfortunately,
there are risks with every single drug we use. We have and will
not ever reach perfection. We must remember that the benefits of
our vaccines far outweigh the risks. Especially for those who are
ill or immunosuppressed like Christopher was. There are innocent
children and adults who come in contact with the public everyday
who would die if they were exposed to the diseases we can prevent.
If everyone around them is vaccinated, they are also protected.
We owe it to them and to ourselves as a nation to achieve the highest
level of protection possible. We must win the world-wide war against
infectious disease, and vaccines are our most powerful weapons.
We cannot win, however, if we do not use them. Leaving any population
unprotected is like surrendering to a defeatable foe. We must never
surrender!
References for Rebecca Cole's testimony can be found on her website.
Please see the link below.
On her website, Rebecca Cole writes: "The vaccine (Varivax)
wasn't licensed when he (Christopher) was young, but it had been
in testing for many years. Now it is available, and I am continuing
to fulfill a promise I made to myself and to him. I've worked since
his death in 1988 to see that no one is injured or dies from this,
or any preventable disease again."
VIEW A PHOTOGRAPH OF CHRISTOPHER, AGE 11
To obtain the text version (HTML format) of Rebecca Cole's "Unprotected
People" testimony along with a photo of Christopher, taken
in April 1988, just two months before his death, go to the Immunization
Action Coalition (IAC) website at: http://www.immunize.org/genr.d/issue127.htm
Editor's note: Varicella (chickenpox) vaccine is recommended for
all children 12 months of age and older who have not had prior infection
with chickenpox or been previously vaccinated. All susceptible adolescents
and adults (those with no history of chickenpox disease or vaccination)
should also be vaccinated.
To obtain a copy of the Centers for Disease Control and Prevention's
(CDC) recommendations on the prevention of varicella, go to the
following links:
Prevention
of Varicella: Update Recommendations of the Advisory Committee on
Immunization Practices (ACIP), May 28, 1999
Prevention
of Varicella: Recommendations of the Advisory Committee on Immunization
Practices (ACIP), July 12, 1996
For more information on varicella disease, visit CDC's "Varicella
Disease (Chickenpox)", "At a glance" page located
on the National Immunization Program website at: http://www.cdc.gov/nip/diseases/varicella/
To obtain a complete list of all "Unprotected People"
stories previously published by IAC including personal experiences
with hepatitis B, pertussis, tetanus, polio, and many other vaccine-preventable
diseases, go to: http://www.immunize.org/stories/unprot.htm
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Editors' note: The Immunization Action Coalition is collecting
stories of people who have suffered or died from vaccine-preventable
diseases.
Please let us know if you have personal stories, or if you know
of stories that have appeared in the media, of the suffering that
occurred because someone wasn't immunized. We also request case
reports to help us illustrate the morbidity and mortality caused
by vaccine-preventable diseases.
If you have stories and/or case reports that can help save lives,
e-mail them to us at admin@immunize.org
or fax them to 651-647-9131.